Annual Questionnaire

Annual Questionnaire from Dr. Tomatsu -annual follow-up study. I really appreciate your kind cooperation on the annual follow-up talk with us. This annual survey is quite important to know the progression of the disease as well as current status of your child. Please kindly cooperate on behalf of your child. To renewal your information, you can answer again the questionnaire through web site www.morquio.com or e-mail to me directly, or download from this site at AnnualQuestionnaire.doc. Especially, please keep and update the medical record annually to evaluate the condition. If you can send the current height and weight with the current age and growth chart, I can evaluate your child's status in comparison with the age-matched control population and affected children. We would like to also investigate some specimen from each patient to know the clinical condition of each patient. We recently established keratan sulfate (KS) assay system. As you know well, KS is the storage material for Morquio patients causing the bone dysplasia and the key substrate to evaluate the condition of the progression of the disease. Dr. Shunji Tomatsu and Dr. Adriana Montano Department of Pediatrics, Saint Louis University, Pediatric Research Institute 3662 Park Ave. St. Louis MO 63110-2512 Phone: +1-314-577-5623 ext. 6213 Fax: 314-577-5398 E-mail; tomatsus@slu.edu

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