August 27, 2005

Dear All,

Thank you very much for all of your formidable efforts. I really appreciate your understanding and support. I am now in Austria to attend Austrian MPS Society meeting to present the update data on Morquio research.

Austrian Morquio families also help a lot on our research for these years.

I hope all efforts lead to making the clinical trial become real and the development of the drug.

I will do my best to get success.

Most sincerely,

Shunji Tomatsu MD PhD

Here is my family Renee's Mom, John, Renee & Jake, Renee's Dad at Auction Gala in 2005

Here is my family at our July, 2004 fundraiser.
Renee's Mom and Dad, Renee & Jake, Dr. Tomatsu,
John and his Parents.

Morquio Syndrome type A is a progressive disorder stunting growth and causing severe skeletal disease in young children. Because of the many symptomatic bone deformities, these children end up having frequent surgical operations usually before five years of age. The progressiveness of this disease leads to a shortened life span, and typically places the child in a wheelchair by the age of ten. 100% of all donations will go directly to researching a cure.

Dr. Tomatsu with Children at July 2004 Fund Raiser
        

All Donations are Tax deductible
The Jacob Randall Foundation for Morquio
http://www.jacobrandallfoundation.com
rjl197@verizon.net