14716 Tudor Chase Dr.

Tampa, FL. 33626

813-731-8274

www.jacobrandallfoundation.com

Save the date – May 2, 2009

Mark you calendar now for the 3^rd annual Jacob Randall Foundation for Morquio 2009 Golf and Silent Auction/Dinner at the Countryside Country Club,

Clearwater, Florida.

This foundation was formed by  the Littles when their son Jake was diagnosed with Morquio Syndrome.

Morquio Syndrome is a very rare, progressive disorder stunting growth and causing severe skeletal disease in young children.  Because of the many symptomatic bone deformities, these children end up having frequent surgical operations, usually before the age of five.  The progressiveness of this disease leads to a shortened life span and typically places the child in a wheelchair by the age of ten.

With hope, a wonderful miracle is just around the corner.  Ongoing research has isolated and created the enzyme that will completely stop the progression of this terrible disease in young children. The primary researcher on Morquio Syndrome, Dr. Shunji Tomatsu believes he is close to providing the necessary treatment that would completely eliminate the symptoms of this disease.  The Jacob Randall Foundation, a 501(c3), was created to raise funds for Dr. Tomatsu and his much needed research.  Last year’s event raised over $60,000 that was given directly to Dr. Tomatsu to help fund this critical research. 

I hope you’ll plan to attend this year’s event to help us get closer to developing a cure and to celebrate how far we’ve come.

To get more information about the event, sponsorship opportunities, or the foundation, visit www.jacobrandallfoundation.com.